The Raul

{Sunday’s Light} As the sun has set on this Sunday night, tonight’s mots beautiful light is Raul. We are honored to introduce angel Raul and dedicate the Raul Binkeez for Comfort.

raul

Raul was born in Barlad, Romania, on October 19th, 2009. He was born with the rare genetic condition Epidermolysis Bullosa (EB), as was his sister who passed away at one month old. I met Raul when he was four months old, on a volunteer trip to Romania.

After a lengthy process, Raul was denied a medical visa by the U.S. Embassy in Bucharest, but was later granted Humanitarian Parole by U.S. Immigration in July, 2011. Raul was granted permanent residency in the U.S. in 2013.

Raul has severe RDEB, which is progressive in nature, and he faces some serious health issues because of it.

Raul was in MN for a bone marrow transplant for 9 months to help improve his EB, or at least slow progression. Unfortunately, he has had many complications, including now kidney failure and HLH and on May 9, 2016 he passed away in his mommas arms. Binkeez for Comfort created a monthly program in early 2016 at Children’s of Minnesota for Butterfly children receiving a bone marrow transplant inspired by Raul.

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