the Rachel

{Faith for Rachel} As the sun has set on this Friday night, tonight’s most beautiful light is Rachel. We are proud and honored to introduce the Rachel Binkeez for Comfort.

Purchase your Rachel Binkeez Today by clicking on desired size.When you Buy a Binkeez, you Give a Binkeez to a fighter in need and a small proceed is made to Sammy’s Superheroes Foundation Childhoold Cancer Research Fund. Click on size below!

Rachel is our precious little girl who suffers from AHC (Alternation Hemiplegia of Childhood) which was discovered only in 2012. Rachel’s overall develpment is that of a 3 month old. She is not able to walk, talk, and does not make many movements with her arms or legs. She is currently working on head control and tracking skills with her head and eyes. Although Rachel is non verbal, she does have ways of communicating with us. She makes sounds and noises mostly and uses her eyes to help us understand what she needs. People often ask if she recognizes us and she definitely knows her family and people she sees often, and will respond to them much more openly than to those she is not around much. She has begun to smile and laugh, get stronger physically and have much more of a personality thanks to the wonderful team at Duke Children’s Hospital getting her infantile spasms under control.

Rachel has a long list of health concerns such as Cerebral palsy, Scoliosis associated with other condition, Hypertonia Seizures, Microcephaly, DDH (developmental dysplasia of the hip), Contracture of tendon,Cortical visual impairment, Strabismus in neuromuscular disorder, ATP1A3 de novo gene mutation, T360R at protein level and c.1079 C>G at the cDNA level, Dystonia generalized precipitated by excitiment and anxiety resulting from being in crowds with noises and lights often leading to seizures, Bilateral hemiplegia episodes, Complex partial seizures with blinking smiling and mouthing,Tonic seizures, History of stridor r/o secondary to laryngotracheomalacia, Scoliosis, Abnormal eye movements, Stridor, Sialorrhea, Hypertension secondary to ACTH therapy, Laryngomalacia, Reflux ,Urinary retention and GJ tube dependent as well as multiple food allergies.

Although our precious daughter suffers such a long list of health concerns she is the happiest little girl I have ever seen and is very content. She makes our world complete and has been a tremendous blessing to our family. We don’t ask for prayers for her healing, but we ask that you pray as we do, to pray daily for God’s will to be done in her life. We would love nothing more than to see our precious angel healed but if that is not the plan that God has laid out for her life then we don’t want be selfish and beg him to change his plans. We also ask for your prayers for our family to give us strength and knowledge to just be willing to take one day at a time to face life’s challenges as well as it’s many blessings.

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