The Grayson

Meet our friend Grayson. He was born on November 27th, 2013 a seemingly healthy baby boy, at 2 days old his parent’s world was turned upside down, they found out that he had 4 severe heart defects. DILV, TGA, IAA, and VSD.

He underwent his 1st open heart surgery on December 6th, 2013.  He had Congenital Heart Defects and he got very sick. Grayson has undergone 3 open heart surgeries.

Grayson was listed on the Unos transplant list Status 1A.  His parents would learn that he had issues with anitbodies in his little body that would make it very very difficult to receive a heart transplant.  He would under go 5 rounds of different treatments to try and lower his antibodies. After the first 4 treatments, they were still looking at a very slim chance he would get the heart that matched him perfect enough to be a good transplant.  As shared on his Facebook page, “But God has a plan and His timing is all His own. We were on or 2nd day of his 5th treatment and we got THE call on March 19th, 2015. They had a heart for Grayson and it was the best match we could have every hoped for. At aroudn 330AM the morning of March 20th 2015 the first day of spring Grayson got his perfect heart ♥ the one in a million match we thought we would never get.  He has done so phenomenal since transplant he came home 11 days later, and his first biopsy was a good one. We still have a journey and he will always be a warrior. But we know God has him and Grayson is a true warrior and he brings joy to everyone who meets him ♥ “
To follow Grayson’s journey:
backto top