The Kylie

{Inspiration Kylie}  We ask for our community to storm the heavens for sweet Kylie.  Just last night she had emergency surgery for a massive brain bleed – the second in two weeks.
This past weekend part of our team had the honor to meet this beautiful family and present them with the Kylie Binkeez and a matching family size Binkeez in her fabric. A quote we saw sums up the strength in Kylie.
It’s not the size of the girl in the fight it’s the size of the fight in the girl.
Meet Angel Kylie. Diagnosed with stage 4 Neuroblastoma. Kylie went through aggressive treatment with many complications. On December 26, 2013, Kylie went to the doctors for a swollen eye. The first scan showed a mass behind her eye and doctors hoped it was an infection. Unfortunately, it wasn’t. In total, little Kylie had her main tumor in her abdomen attached to her left adrenal gland, a dozen small tumors on her liver, over two dozen on her lungs, a tumor behind her right eye, and bony lesions that spanned from the top of her skull all the way to her ankles, causing her to be unable to walk or crawl because of bone damage… as the doctors described it, an explosion of tumors went off in her body. The cancer spread to her bone marrow as well. On Dec. 30th 2013 Kylie was diagnosed with stage 4 high risk, mycn amplified, Neuroblastoma. On top of Kylie’s cancer, after three rounds of chemotherapy, she was diagnosed with Vasoactive Intestinal Peptide (VIP).  Her tumor had a mutation called BRAF; Kylie is the only Neuroblastoma patient to ever have this mutation. This type of mutation is normally found in Melanoma patients.

Kylie was strong & a fighter and through all of the complications, she was declared NED (No Evidence of Disease) on July 7, 2014. 3 weeks later she  relapsed on her skull, behind her eye, on her lungs, and her liver. Because she is mycn amplified and she relapsed in the middle of treatment that meant her disease was very aggressive and starting to take over her little body.
As shared on Kylie’s Facebook page, “On February 1st 2015, we got the news that her body had been taken over and there was nothing left we could do. On February 7th, 2015, my sweet angel gained her wings. Jesus had finally called her home at 2 1/2 years old and after fighting for 13 months. Kylie won. She fought the good fight never letting it bring her down or take away her smile. She got the ultimate gift, to be cancer free living in heaven. We miss our girl more than words could ever explain, but we get by on knowing she isn’t suffering any longer.”
To learn more about Kylie and her fight visit:
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